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Surgery Update
It was a long day
but a very rewarding one!!!I arrived at the
Ronald McDonald House at 6:15am to the smiles of Elena and her
family. We had to be at the hospital at 6:30am so we made it
there in plenty of time. It was cold, dark, and the
beginning of a very long day for Elena and her family.
We were
ushered into a room in the same day surgery area at Cincinnati
Children's Hospital. Sean, our cameraman for Channel 9 News, met
us in our room so that he could shoot some footage of Elena playing and
being a "normal" child before her life-saving open-heart surgery was
started. Elena and her brother Sasha were playing with some toys
provided by her nurse, Beverly.
After having some time to
play and after getting her preliminary measurements taken,
saw the surgeon, Dr. Manning and a lot of other key medical personnel
who would be working on Elena, she was given some "Happy"
juice to relax her. That's when Sean got some beautiful pictures
of Elena relaxing and smiling. She was quite the
trooper!!!
It was finally time for Elena to go to the
operating room so we all got to walk her to her surgical
destination and kiss her good luck as her anesthiologist carried
her into the O.R. Now the waiting game began at just 7:20
in the morning!
I was so glad to have Betsy as our nurse
practioner not only for Elena's parents but for me as well. Betsy
knows our Foundation very well and it was great to be working with a
someone who knows what we are trying to accomplish with helping
families such as Elena's. Betsy gave us the first update stating
that they had gotten all of Elena's lines in and they were ready
to start her operation. This normally takes close to an hour or
more just to get to this point. The next update was that the
incision had been made and that her shunt was removed, patch was put
over the hole in her heart and things looked good with her valve.
The next time Betsy talked with us was that they had taken Elena off of
the bypass machine because things looked good. The bypass machine
does the work for the heart so that it can be operated on. After
doing some measuring, Dr. Manning did not like the pressures that
were showing so Betsy let us know that Elena was being put on
bypass a 2nd time so that he could open up her valve to make it bigger
and put a patch over it so as to enlarge this opening.
After this we figured it would take some time but the time
seemed to be dragging by so slowly even though the clock was ticking,
time for me was going by too fast because we hadn't received an
update in awhile. I thought to myself this isn't good and I was
really getting concerned because we hadn't heard
anything.
Finally Betsy came out to let us know that Elena had
to be put on the bypass for a 3rd time and finally a 4th time to
make sure her repair was right for her. The whole time Betsy said
that Elena was stable while being operated on which is good but 4 times
is quite the number of times to be on bypass.
Betsy suggested
we go get something to eat because it was after 2pm and we were all
getting pretty hungry and so we went to the cafeteria for a bite to
eat. A few short minutes after coming up from the cafeteria to
the waiting area, Betsy came back to see us and said that Dr. Manning
was wrapping up things and he would see us shortly. It was a few
short minutes later that we were being paged to hear the results from
the surgeon himself.
Sean, from Channel 9 News, was
wonderful enough to stick around with us the whole time so that he
would record Dr. Manning talking with Elena's family and hearing the
good news that she was fixed even though it took longer than what any
of us estimated, she was repaired. Sometimes with these heart
kids, they don't read the book of what is standard - a lot of times
they have their agenda and when they decide to turn the corner for the
better, they do and we as parents and ones praying for them, just have
to be patient! And sometimes that's very, very hard to
do!!!
After Dr. Manning talked with us, we moved up to the 6th
floor Cardiac ICU waiting area. I suggested to Pavel and Jennifer
to take a break for a little bit since they couldn't see Elena for
about another hour so that the CICU staff could get her stablelized in
her own room so they took Sasha for a walk outside. I was sitting
with Joi who came up to visit us while we were waiting. Joi has
Sara who also has had a Tetralogy of Fallot repair like Elena was
having. (You can see Joi and Sara on our video on the home page
of our website.)
Finally it was time for Pavel,
Jennifer and Sasha to see Elena. Child Life specialists came to
talk with them first to let Sasha know what his sister was going to
look like. They took a Polaroid picture so he could see her first
in a picture before actually seeing her in person to lesson the
shock. For those of you who have never experienced a post-op
heart patient, and a child at that, it can be quite scary!
After coming out from seeing Elena, her parents thought
she looked good and so did I after being able to see her. The
first 48 hours can be quite trying especially after getting her heart
messed with as much as she did. I ask that you continue to pray
for Elena and her family as it will be quite the challenge with having
a very active brother who is not allowed in the CICU and with juggling
spending time between the children. My Mom and Dad have offered
to have Sasha come to play with my nephews, their grandchildren and Joi
has offered as well. We'll just play this by ear to see how things
go.
So for now, it was a very long day, but such a rewarding
one as well! The game plan for the rest of the night is to keep
Elena intubated so that the ventilator is doing the work for her and
let her rest. She's had a rough, rough day and she needs her just
lay low and rest. Tomorrow the doctors and nurses and therapists
will see how she is doing and if she is ready, they will extubate
her. Getting her off of the ventilator will allow her to breath
on her own and start the process of recovery!
I ask you again,
to please, if you could think of them, say a prayer for them if
this is appropriate for you to do and lastly, if you have not done this
already, please think about sending Elena and her family a card and you
can send it to:
Ronald McDonald House c/o The Cherkasov
Family, Room 20 350 Erkenbrecher Avenue Cincinnati, OH
45229
Thank you to those who have already sent them a card -
the cards that they have received already has really brightened
their days!!! It's amazing what joy these cards can bring to lift
their spirits. It's always hard being away from home but then
when you add a holiday into the picture, it can be even
more stressful so thank you in advance for taking a few
minutes of your time to jot a few words down such as
"I'm thinking of you!" on a piece of paper - it's not
necessary to run to the store to buy a card, a single piece of
notepaper is fine - it's the jesture of good will that will mean the
most. Please feel free to tell them your connection with
our Foundation if you'd like as well. Sometimes it's nice to put
the connections together.
We have shared with Jennifer and
Pavel that we have some of the most wonderful people believing in what
we are trying to accomplish with Aubrey's Foundation and during this
Thanksgiving season, we want to recognize how blessed we really
are!!! |
Watch Channel 9 News this Wednesday at
5pm...
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November 22,
2006Carol Williams "Healthy Living" Segment
Carol Williams with Channel 9 News
will be doing a story on Elena and all of the wonderful footage that
Sean has videoed of Elena and her family's journey with coming
here from Russia for her open-heart surgery. This will air at the
5pm news slot. We want to thank Channel 9 News producer,
Stephanie, as well for producing this segment, coming to the airport
with Sean to meet Elena and her family and for believing in our
"Healing the World's Hearts" program. We're hoping that Carol
Williams along with Stephanie and Sean can raise awareness of our
organization's mission and programs so that we can continue to bring
many children from the United States and from around the world to
Cincinnati Children's Hospital for much needed life-saving
open-heart surgeries.
There will also be a follow-up story the
following Wednesday, November 29 during the 5pm news to
give everyone an update on Elena and her condition after
surgery. Hopefully we will have some great coverage of Elena
playing again and being a "normal"
child. |
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Thank you
from the bottom of our hearts and double lungs for all of your support
with our Foundation and especially with bringing our first patient to
Cincinnati Children's Hospital for our "Healing the World's Hearts"
program.
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For more information on what we do as a Foundation and
how we help to put smiles on the faces of many children and their
families, please go to www.aubreyrose.org.
The Aubrey Rose Foundation is a
501(c)(3) non-profit, tax-exempt organization designated by the
Internal Revenue Code. Our tax identification number is 91-2103451.
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OUR MISSION: The Aubrey Rose Hollenkamp
Foundation's mission is to put smiles on the
faces of families and siblings caring for seriously ill
children.
CONTACT
US: If you would like to reach Nancy or Jerry
Hollenkamp, Foundation Founders, please contact us at nancy@aubreyrose.org or call us
at (513) 265-5801.
Jerry & Nancy Hollenkamp www.aubreyrose.org
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